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By Danette Dooley, special to The Telegram, June 28, 2007
Nathan Jackson is looking for someone to find a cure for his ‘episodes.'
"Sometimes, when I have an episode I hurt myself, and if you look up here, you'll see a little scar," the eight year old says, pointing to just above his left eyebrow. "Because when I was in play school, I had a little episode and i flicked a chair and the side of it hit here and cut it open. There was lots of blood coming down and that's when mom came in."
Nathan began having seizures at age three. He's been diagnosed with juvenile myoclonic epilepsy. The seizures are caused by an abnormal discharge of electrical activity in the area of his brain responsible for muscle control.
Nathan is the driving force behind a golf tournament taking place at The Willows in Holyrood, with all proceeds going to Epilepsy Newfoundland and Labrador (ENL). His mother, Darlene Delaney, says the idea for the fundraiser came about when she and her son were participating in a walk for juvenile diabetes recently.
"Nathan wondered how come nobody walks for him and his epilepsy. So I brought the idea to my boss and we decided having a fundraiser was a great idea."
During an interview at their Mount Pearl home, Nathan talks about his love of sports. Dressed in sneakers, black shorts, and a long-sleeved white shirt with blue and black stripes, he talks excitedly about joining soccer.
"If you want, I can tell you all about my episode rules," he says. "I have to stay away from hard wood, stay away from metal, and stay away from concrete."
Nathan's mother says that while the seizures are embarrassing for Nathan, it's the injuries he sustains that cause her the most concern.
"That's frustrating as a parent," she says.
"But Mom's always telling my teachers about my episodes so they're always keeping an eye on me," Nathan says of his teachers at Newtown Elementary.
A single mother, Delaney is originally from Conception Bay North and is an executive assistant at Investors Group. She spent more than a decade in Alberta before returning to Newfoundland last summer with her son, in order to be closer to her family. She said she's grateful to the doctors at the Janeway for helping her understand her son's condition and she's found support through ENL.
"(ENL founder and executive director) Gail Dempsey is going to come to Nathan's classroom in September and educate the kids about his epilepsy," Delaney said. "And they have given us lots of information and goodies to pit in our loot bags for the golf tournament."
Funds raised through the tournament will be matched by Investors Group's National Office, according to the company's regional director, Robert Campbell. And, thanks to Nathan, other charities will benefit in the future if it becomes an annual event.
"We're going to hold a tournament every year and we'll pick another worthy charity to support next year," Delaney explained.
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