Epilepsy Newfoundland & Labrador   

1 in 10 people will have a seizure.  1 in 17 Seniors will develop epilepsy.  Over 10,000 people in Nf. & Lab have epilepsy.

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Official Purple day T-Shirts are now available. Order yours today!

Shirts are $10 each with $2.50 shipping and proceeds go to Epilepsy NL.
Wear Purple on March 26 and bring awareness for Epilepsy.
T-Shirts come in medium, large and x-large.
To order t-shirts please call (709)-722-9820 or 1-866-EPILEPSY (toll Free)
or email info@epilepsynl.com

Canadian Epilepsy Alliance Welcomes Drug Shortages Announcement

Vancouver, February 10th 2015 - Canadian Epilepsy Alliance members joined Federal Health Minister Rona Ambrose today as the Minister announced that Canadian pharmaceutical manufacturers will now be required to provide notice of shortages of their drugs. Currently the drug shortage notification is voluntary.

“This is a major step forward for people living with epilepsy, and other diseases and disorders who require ongoing access to their medications,” said Deirdre Floyd, President of the Canadian Epilepsy Alliance. “It’s terrifying when someone living with seizures goes to the pharmacy to refill their prescription only to find out there is a shortage. It has happened too often in recent years to too many people who can’t miss their medication, and hopefully this will help to address shortages in the future.”

“On behalf of the 300,000 people across Canada living with epilepsy, I want to thank Minister Ambrose for implementing this change to the Federal health regulations. I also wish to thank the Members of Parliament, from every party, who have supported past efforts to ensure the safety of people who require ongoing medications.”

“Today’s announcement won’t end drug shortages,” continued Floyd. “That will require further efforts on the part of government and industry to react when a shortage is anticipated. What today’s announcement does mean is that individuals and families have a real opportunity to prepare in times of anticipated crisis.”

Minister Ambrose’s announcement comes after years of work on the part of the Canadian Epilepsy Alliance and other organizations, raising the issue of drug shortages with Federal regulators and Parliamentarians. The voluntary notification system, where manufacturers may provide information on an industry administered website, has often seen shortages not reported until patients discover the shortage on their own.

This is especially dangerous for individuals living with epilepsy where an interruption in their medication can result in serious adverse effects or even death. It is hoped that with mandatory notification, individuals can work with their physicians and pharmacists to ensure an adequate supply of the medication they require.

Nathalie Jette, President of the Canadian League Against Epilepsy, was also encouraged by the announcement and congratulated members of the Canadian Epilepsy Alliance for their efforts in bringing this important healthcare issue to government. “Mandatory reporting of drug shortages is critical for those with epilepsy as it is unsafe to stop antiseizure medications abruptly. This new policy will enhance the likelihood of ongoing safe care for those with epilepsy who already have to deal with so much uncertainty related to their conditions.”

Said Floyd, “This is an important decision for Canada’s epilepsy community.”

Proclaim and Celebrate March 26th as Purple Day!


                                                 Front row, left to right: Minister Susan Sullivan,  MHA Grand Falls/Windsor-Buchans,                              The Atkins family celebrate Purple Day with Mount Pearl Senior High!
                                                     Minister of Health and Community Services Back: Susan Ryder, Information Officer
                                                      Epilepsy NL, Cassie Singleton, Purple Day Ambassador and Gail Dempsey,
                                                        Executive Director Epilepsy NL & President of CEA.

                                                      Front row, left to right: Jack Harris, MP,  Cassie Singleton, Purple Day                                  Gail Dempsey, Executive Director Epilepsy NL & 
                                                                       Ambassador,  Back: Susan Ryder, Information Officer Epilepsy NL,                                          President of CEA wearing Purple shoe laces!
               Gail Dempsey, Executive Director Epilepsy NL & President of CEA.                                                                                                                                             

                                       Above: Jack Harris, MP presents the proclamation to                       
               Cassie Singleton,  Purple Day Ambassador

                                                                 Above (Left to Right):  Cassie Singleton, Purple Day Ambassador, Susan Ryder                                 Mayor Otto Goulding, Town of Pasadena
                                                                      Information Officer Epilepsy NL and Dan Bobbett, Mayor of Paradise                                               proclaiming Purple Day with Tim Spicer                                  

Purple Day 2014 In The House Of Assembly

During the March 26th session of the House of Assembly, Minister Sullivan wore purple very proudly and gave
a very powerful message to our purple day ambassador, Cassie Singleton and to all of those living with seizures.

" I rise in this hon. House today to recognize Purple Day for Epilepsy in Newfoundland and Labrador, and to raise awareness of this
neurological disorder in an effort to reduce stigma and improve the quality of life for those living with epilepsy.  Epilepsy is one of the most
common neurological conditions with approximately one in twenty-six people expected to develop epilepsy at some point in their lifetime. 
More than 10, 000 people are affected by this disorder in Newfoundland and Labrador.  Today, during Purple Day, I encourage residents to wear
the color purple and to participate in Purple day activities in their communitites as a show of support for people like Cassandra living with epilepsy."
                                                                            - Minister Susan Sullivan

"We are very happy to stand here today and talk about epilepsy.  Myself, the leader of the Oppositions, all of the caucus, and many
members on all sides of this House are happy to wear purple today to show our support and help raise awareness about epilepsy.  It is
important to raise awareness because of how it affects those living with epilepsy, and their family and friends.  We have about 10, 000 people
in our province today with epilepsy.  This is a huge portion.  It is the fourth most common neurological disorder and there is no known cure yet.
I am urging everyone today to get behind Purple Day and to help people understand epilepsy better and the people who live with it.
Hopefully, one day, through research, we will better understand it and a cure will be found."
                                                                - Andrew Parsons, MHA

"I , too am very happy and pleased to be standing here today wearing purple in solidarity with those living with epilepsy and their families. 
With 10,000 people in the province affected, it is obvious many of us have been touched by epilepsy in some manner, either within
our families or sometimes even in organizations we are a part of.  I congratulate Epilepsy Newfoundland and Labrador on the work
they do in that regard.  Today, I do encourage people not only to wear purple in support, but to also take the time to become more
aware of the issues surrounding the condition and to learn the appropriate first aid for seizures."
                                                           - Lorraine Michael, MHA

  & Updates

Mark Critch is a Newfoundland Comedian but did you know he has epilepsy too?
Click here to read his story!

Evan Newhook is this year's Purple day Ambassador! He's a local hero.
Click here to read his story!

Since 2009, Epilepsy NL along with Canadian Epilepsy Alliance have been working to have the government enforce mandatory drug shortage reporting. We are very proud to have been invited to this announcement, where Suzanne Nurse, chair of the Drug Shortages Committee for the Canadian Epilepsy Alliance spoke.
Click here to read more!

Landmark study reveals impacts of neurological conditions on Canadians
Honourable Rona Ambrose, Canada’s Minister of Health, announced the release of the study’s report,
Mapping Connections: An Understanding of Neurological Conditions in Canada.
Click here to open the Report, Click here to open the News Release.

Help Out The NHCC:  Join This Campaign By Writing A Letter To Your MP!
Click here to find out how!

Partake in a study to help create a better understanding of the public’s perception of surgery:
“The Impact of Knowledge Translation on Attitudes Towards Surgery Among People with Epilepsy: a Randomized Controlled Trial” is a study by Dr. Taufik A Valiante.
This study will assess the desire for surgery among people with epilepsy at the non-profit governmental epilepsy agencies and the impact of knowledge translation on their attitudes towards surgery. To understand this on a broader level and address the possible geographic effects on such interventions, Dr. Valiante would like to test all the provinces across the country. Him and his team believe the results of this study will help them effectively develop practical tools for knowledge translation to the public and the epilepsy community. If you wish to participate in Dr. Valiante’s study please take the survey below:

Click here to take the survey!

UPDATE:  Clobazam Supply - May 28th, 2014  
Click Here To Read The Details

FASHION at Previously Loved Clothes and Things!
Click to find out why our store is a favourite place to shop!

Previously Loved Clothes and Things
Customer Feedback Survey from March 2013: Read the results here.

Epilepsy NL Scholarship 2013-2014
Click to meet this year's winners!

March 26th is Purple Day for Epilepsy
A positively purple celebration of global proportions.
Click here to learn all about Purple Day.
Click to listen to a News Release about Purple Day

To Better Understand And Respond To Incidents Involving People Living With Epilepsy
Click Here To Read


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